Cystic Fibrosis

7 Things You Probably Don’t Realize About a Cystic Fibrosis Patient-Term Life

CF is often called an invisible disease. It’s invisible in the sense that you can’t quite see what’s going on underneath my skin. If you saw me walking down the street, your first thought might be, “wow that guy looks like a stud!” not, “wow that guy looks horribly ill.” While I may consider...

Couple treats both children with Cystic Fibrosis and tries to raise money for event | Med Log

View full sizeExpress-Times Photo | BILL ADAMSJamie Remaley demonstrates the breathing treatments her children Radek, right, 3, and Peyton, 8 months, have to undergo daily. If there’s one thing Jamie and Shane Remaley have learned over the past three years, it’s to adapt. Kitchen cabinets and drawers that would normally contain food and utensils are loaded...

Cystic Fibrosis Guide: Causes, Symptoms and Treatment Options

What Is It? Cystic fibrosis is an inherited disease. It causes cells to produce mucus that is sticky and thicker than normal. This mucus builds up, particularly in the lungs and organs of the digestive tract. Cystic fibrosis affects many parts of the body, including the lungs, liver, pancreas, urinary tract, reproductive organs and sweat glands....

Cystic Fibrosis Drugs Can Be Tested First Using Patient’s Own Stem Cells in Laboratory-Term Life

Stem cells obtained from the gut of a patient with cystic fibrosis (CF) and grown in the laboratory could help predict whether a certain treatment will be effective for that particular patient – potentially saving the patient from enduring long and stressful treatments that may never work. The move is also a step forward in personalized medicine. In...

Intestinal Microbiome of Children with Cystic Fibrosis Promotes Gut Inflammation, Study Finds-Term Life

Young children with cystic fibrosis (CF) exhibit a more pro-inflammatorygastrointestinal microbiome, which may underlie impaired nutrient absorption, according to the study “Metagenomic evidence for taxonomic dysbiosis and functional imbalance in the gastrointestinal tracts of children with cystic fibrosis,” published in the journal Scientific Reports. The results suggest that therapeutics modulating the intestinal microbiome in...

Longford Cystic Fibrosis campaigner vows to keep fighting

By aisling kiernan Cystic Fibrosis patients in Ireland have expressed dismay after a revolutionary new drug was rejected on cost effectiveness grounds. Orkambi, which greatly improves quality of life for CF patients, would cost the HSE €392 million over five years, according to the negative assessment by the National Centre for Pharmacoeconomics (NCPE). According to Longford woman...

Robert Downey Jr. Dressed Like A Tiger To Invite A 7-Year-Old Cystic Fibrosis Patient To The Captain America: Civil War Premiere

For a guy who’s known worldwide for portraying a genius billionaire playboy philanthropist, you’ve got to hand it to Robert Downey Jr.—he sure seems to relish being Iron Man. And who can blame him? Especially when he gets to play real-life hero to kids like Daniel, a 7-year-old who—Like Iron Man’s alter-ego, Tony Stark—has a medical condition...

15 Famous People with Cystic Fibrosis-Term Life

List of Famous People with Cystic Fibrosis ranked by fame and popularity. Cystic fibrosis is a autosomal recessive genetic disorder that affects the lungs, pancreas, liver and intestines. Cystic fibrosis is caused by a gene mutation and there are no cures for the disorder. Gene therapy and transplantation can help treat some of...

6 Things I Want You to Know About Raising a Child with Cystic Fibrosis

Raising a child with a health condition can be a lot of things: stressful, a blessing, educating, hopeful, tiring, eye-opening, frightening, and heartbreaking. And until you’ve done it or been close to someone who has, you just don’t know what it’s like. Sometimes you don’t know what to say or how to help. May...

Area children affected by cystic fibrosis live life one small step at a time-Term Life

Wheezing and coughing are part of everyday life for two area children. They’re too young to understand they have symptoms of an insidious disease that will most likely shorten their lives. Hannah Buck, 6 and Hannah Moore, 2, both of St. Joseph, were diagnosed with cystic fibrosis, a chronic, progressive disease. “Hannah is actually unaware of...

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